Maximizing your years
Queen Victoria is said to have been a carrier of hemophilia B, and is believed to have passed it on to three of her children.
Hemophilia is sometimes referred to as the "royal disease" because of its presence in a number of European royal families.
This can be done either to treat a bleeding episode already in progress, or on a regular basis to help prevent bleeding episodes. Indeed, some people receive continuous replacement therapy.
Hemophilia is usually inherited, which means that the sufferer is generally born with the condition. Males are much more likely to present with the condition than females.
The main treatment for hemophilia involves replacing the necessary clotting factor through a tube in a vein.
It is also possible to develop hemophilia, in which case we refer to "acquired hemophilia." This can be associated with a number of things including pregnancy, autoimmune conditions, and cancer.
The signs and symptoms of hemophilia vary depending on the sufferer’s level of clotting factors. If the clotting-factor level is only slightly reduced, the person may only bleed after surgery or trauma.
However, if the clotting-factor level is significantly reduced, the sufferer may bleed easily for no apparent reason.
Signs of spontaneous bleeding include large or deep bruises, unusual bleeding after vaccinations, surgery, dental work, and blood in your urine or stool.
For people with severe hemophilia, there is a chance that a knock to the head could result in bleeding in the brain. This is one of the most serious potential complications of the disease.
Despite his hemophilia, the Bolsheviks had a hard time killing Nikolaevich at first. There were multiple failed gunshots and stabbings because he was wearing a vest of gems under his shirt.
He was diagnosed with AIDS in 1984 when he was just 13 years old, and died from the disease six years later, just a few months before Congress enacted the Ryan White CARE (Comprehensive AIDS Resources Emergency) Act.
One of the more famous descendants of Queen Victoria, Alexei Nikolaevich was the only son of Emperor Nicholas II and Empress Alexandra Feodorovna.
And last but not least, there was Ryan White, the boy who became famous precisely because he had hemophilia.
Since then, this legislation has been reauthorized several times and it is now the Ryan White HIV/AIDS Program, which provides medical care and support for people who are un- or underinsured and living with HIV.
Sources: (Mayo Clinic) (Hemophilia News Today) (Everyday.Clinic)
See also: What exactly is Alport syndrome, and how serious is this inherited disorder?
To quote him, “They [his doctors] said they'd rather that I'd taken up playing chess or playing a musical instrument, but that they weren't going to stop me.”
In 2015, Alex Dowsett broke the world record for distance cycled in an hour (32.894 miles). What many don't know is that this British professional cyclist suffers from hemophilia.
Burton once told The New York Times that while his case of hemophilia was less severe, “two of his brothers nearly died from bleeding when they underwent tonsillectomies.”
According to Dowsett himself, he took up cycling because it was less risky than other more contact-based sports, such as soccer or rugby.
Together with Elizabeth Taylor, Richard Burton set up the Burton Hemophilia Fund in 1964 to help find a cure for the disease.
Because Dowsett needs to inject himself with clotting protein factor 8 to control his hemophilia, he is exempt from international cycling rules against injections and blood enhancement therapies.
Prolific actor and husband to Elizabeth Taylor, Richard Burton was the first ever Hollywood star to reveal he had hemophilia.
Hemophilia is a rare condition, but it can affect anyone. As such, there are some celebs who have hemophilia.
Her son, Prince Leopold, died from a hemorrhage at age 30 after he fell and injured his knee and his head. This unfortunate accident occurred just four months before his son was born.
Queen Victoria’s daughters Princess Alice and Princess Beatrice both went on to marry royals from other European countries and pass the disease down.
Borstein has spoken publicly about her family’s experience with hemophilia, and she has participated in campaigns for the National Hemophilia Foundation.
A hemophilia carrier and spokesperson, Borstein is also known for her portrayal of Susie Myerson on ‘The Marvelous Mrs. Maisel.’
Hemophilia is a rare disorder in which the blood doesn't clot properly because it doesn't have enough blood-clotting proteins. Small cuts don't tend to pose much of a threat for people with hemophilia, even though they may bleed for longer after a cut. In severe cases of the disorder, however, the main concern is internal bleeding, which can have very serious complications and even become life-threatening.
Even if you've never met anyone with hemophilia, you can be sure that you've come across them in history books and even the tabloids. Not sure what we mean? Check out this gallery to learn all about hemophilia and the famous people affected by it.
Famous people affected by hemophilia
And why it's called the "royal disease"
HEALTH Blood diseases
Hemophilia is a rare disorder in which the blood doesn't clot properly because it doesn't have enough blood-clotting proteins. Small cuts don't tend to pose much of a threat for people with hemophilia, even though they may bleed for longer after a cut. In severe cases of the disorder, however, the main concern is internal bleeding, which can have very serious complications and even become life-threatening.
Even if you've never met anyone with hemophilia, you can be sure that you've come across them in history books and even the tabloids. Not sure what we mean? Check out this gallery to learn all about hemophilia and the famous people affected by it.